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The Journal of School Nursing
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1059840509334146v1
25/5/342    most recent
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Research Articles

Mothers of Children with Special Health Care Needs: Documenting the Experience of Their Children’s Care in the School Setting

Lori S. Anderson, PhD, RN, CPNP

The numbers of children with special health care needs (CSHCN) have increased in schools. This study was conducted to document mothers’ experiences of the care their CSHCN receive across health care and educational settings. Data were collected during standardized, open-ended, one-on-one interviews with 10 mothers of CSHCN in urban, suburban, and rural areas in a Midwestern state. Interviews were transcribed and content analysis revealed five themes: (a) communication, (b) educational system issues, (c) mother as a caregiver and expert, (d) navigating the system, and (e) strategies and coping. Describing and understanding experiences of mothers of CSHCN is important to developing appropriate supportive interventions.

Key Words: children with special health care needs • medically fragile • school nursing • family psychosocial factors • child health services

This version was published on October 1, 2009

The Journal of School Nursing, Vol. 25, No. 5, 342-351 (2009)
DOI: 10.1177/1059840509334146
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